It was over ten years ago when Mark Rosen, a high-powered financial consultant in Massachusetts, began to feel his legs stiffen as he walked the cold streets of New York City. When a friend noticed Rosenâs speech beginning to slur, the prominent professional attributed it to working too hard or drinking too much wine at dinner. But when the symptoms began to worsen, and he noticed his right toe slightly dragging, Rosen called on a neurological brain specialist who eventually diagnosed him with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrigâs disease.
ALS affects a personâs motor neurons and voluntary muscles, and eventually causes all of the bodyâs muscles to deteriorateALS affects a personâs motor neurons and voluntary muscles, and eventually causes all of the bodyâs muscles to deteriorate. Because it is progressive, life expectancy after diagnosis is usually three to five years. Rosen, however, has already lived more than double that. Through speech technology and remote computing, Rosen still consults part-time and spends extensive time with his children, Zelda, age 15, and Teddy, age 12. Though he can no longer walk or speak, and needs assistance with many basic daily functions, he is determined to continue living as he would have before his diagnosis.
In addition to his laptop, Rosenâs body language, facial expressions, personality and emotions help him convey messages. Because he is so in touch with his inner self and soul, he is able to connect with those around him in ways that many others with his symptoms cannot.
âI am confident now that my childrenâs characters and lives will be enriched, deepened and strengthened by how we are dealing with the challenges of my disease. I have learned that wisdom is not thinking thoughts that weaken me, and that the soul of parenting is sacrifice,â he says. âWhile I grieve and let go of what I have lost, and can no longer live all my dreams as a dadânothing, not ALS, not anything, can take away my âloving attentionâ [for my children], and thatâs what kids need most of all.â
Rosen finds that ALS has enabled him to recognize and value lifeâs gifts in deeper ways. âBeing a father has been, hands down, the best achievement of my life. I now define âsuccessâ as being loved and respected by the circle of people with whom I live and work,â he says. âLife is not about money, power, ambition, popularity and fame. I get that all those things are nice to have and to earn by our efforts, but those are like desserts. The main meal of life is about love, helping others and achieving your potential in pursuing your dreams.â
He now finds it easier to focus on whatâs really important, and appreciates the need to grieve loss and embrace the âsweet sadnessâ of letting go. In fact, he attests that he is currently âmentally stronger and deeply happier than [he] has been in [his] entire life.â
Rosen finds that ALS has enabled him to recognize and value lifeâs gifts in deeper waysAnd Rosen continues to use and develop his business abilities, founding Mark Rosen Incorporated in 2007 to offer management consulting and training to businesses and organizations nationwide, all of which is done through computer communication.
He also finds his identity as a Jew, and the Jewish traditions he follows, a source of comfort and inspiration. At moments, Rosen finds that he needs to actively choose to live on, deciding whether or not the pain and suffering are âworth it.â But every time he decides to âhold on to the certainty of the precious in lifeâs moments,â he finds it is still worth saying âyesâ to life. He would also consider it arrogant of himself to consider giving up, because his existence doesnât belong to him but to something higher. âSo who am I to do anything less than to live to the max?â he asks.
He consciously passes on Judaism and its messages to his children, and seeks to make each moment a memorable one for them. The most meaningful times of Rosenâs recent years include when his son, Teddy, marked his bar mitzvah and put on tefillin for the first time. Though he couldnât verbalize his feelings at the time, his love and pride conveyed to his son how special and historic that moment was.
Another memorable moment occurred when Rosen successfully recited the blessings for affixing new mezuzahs in his home, with his children by his side, despite the great exertion that it required to utter the words.
Those around him view Rosen as a proud Jew with passionate feelings for his Jewish identity and Israel.
Despite his own challenges, he is committed to helping others. He stands out as someone who is very much aware that he has been given a mission, and actively seeks to fulfill it.
âWhenever I meet Mark, I walk away inspired from the way he continues his life despite so many big bumps and obstacles,â said a close friend of Rosen. âMark always helps put life and its happenings into perspectiveâjust by the way he lives his life.â

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